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debra of America is excited to announce a new virtual running event that we hope you will share with your members! The 2020 Virtual Jingle Bell dash4debra will be held from Nov. 27th - Dec. 31st. The event is a virtual charity run to raise money for debra of America's programs to help support those living with Epidermolysis Bullosa (EB), a rare genetic connective tissue disorder that affects an estimated 1 out of every 20,000 births in the United States.
This is a great way to get back in shape and raise funds in the name of EB. Prizes will be awarded to those who raise over $1,000 as an individual. The $35 Registration fee includes a debra holiday hat.
The money raised for this event will go to support research, provide medical supplies to families and patient access to specialists. Many patients with EB travel out of state for care and support, and many insurances do not cover the supplies needed for these patients' care. debra of America is the only national nonprofit organization dedicated to funding research and providing supportive services and programs for those with EB. To learn more about debra, please visit www.debra.org. Let's band together (virtually) and help find a cure for EB.
Date & Time
November 27, 12:16 pm